Overview
Lobbying Costs
350,000€
Financial year: Jan 2018 - Dec 2018
Lobbyists (Full time equivalent)
1 Fte (1)
Lobbyists with EP accreditation
0
High-level Commission meetings
4
Lobbying Costs over the years
-
Info
European Alliance of Associations for Rheumatology (EULAR)
EU Transparency Register
89158218867-92 First registered on 01 Jun 2012
Goals / Remit
The European League Against Rheumatism (EULAR) is the umbrella organization representing national patient organizations, health professionals’ and scientific societies of rheumatology across Europe. EULAR endeavours to stimulate, promote, and support research, prevention, treatment and rehabilitation of rheumatic diseases, as well as the inclusion of people with rheumatic and musculoskeletal diseases in social and economic life. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal system.
Main EU files targeted
Public health policies (e.g. chronic diseases, active and healthy ageing, cross-border health care, access to health care, mobility of health professionals, eHealth, innovation in health care, etc)
Employment and social affairs policies and legislation (e.g. Health and Safety at Work; participation of people with disabilities in the labour market and in education; Disability strategy, implementation of the UN Convention on the rights of people with disabilities, disability and work, etc.);
Research and innovation policies (e.g. Horizon 2020, Horizon Europe, data protection, innovation, personalised medicines, etc.)Address
Head Office
Seestrasse, 240
Kilchberg 8802
SWITZERLAND -
People
Total lobbyists declared
1
Employment time Lobbyists 100% 1 Lobbyists (Full time equivalent)
1
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 01 Feb 2021
Name Start date End Date Neil BETTERIDGE 14 Jan 2020 01 Feb 2021 Neil BETTERIDGE 17 Nov 2018 16 Nov 2019 Neil BETTERIDGE 05 Oct 2017 05 Oct 2018 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
Alliance of Biomedical Research in Europe
International League of Associations for Rheumatology (ILAR)
The Bone and Joint Decade
European Union of Medical SpecialistsMember organisations
None declared
-
Financial Data
Closed financial year
Jan 2018 - Dec 2018
Lobbying costs for closed financial year
350,000€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
- EULAR Brussels Conference 2019: A sustainable and effective EU health policy for citizens: Focusing on chronic diseases and inclusion in social and economic life.
- Secretariat of the European Parliament Interest Group on Rheumatic and Musculoskeletal Diseases (RMDs); 2009-2014 and 2015-2019
- EULAR World Arthritis Day Conference 2018: Bringing chronic diseases to the forefront of health innovation: From the lab to individualised health care.
- EULAR Brussels Conference 2017: The future of health research and innovation after Horizon 2020. Do we need a novel approach?
- EULAR Brussels Conference 2016: "Reducing the burden of chronic diseases in the workplace. New policies for better working conditions and the retention of ill people at work";
- EULAR Brussels Conference 2015: "Towards more integrated health care in Europe: strengthening patients’ access to cross-border care and health professionals’ mobility";
- EULAR Brussels Conference 2014: “Analysing how to reduce the access barriers to health care for people with chronic diseases in Europe. Challenges, good practices and policy options for people with rheumatic and musculoskeletal diseases”;
- EULAR Brussels Conference 2013: “Chronic diseases and health care delivery 2020: The challenge of rheumatic and musculoskeletal diseases. Findings, lessons and perspectives from the eumusc.net project”
- EULAR Brussels Conference 2012 “Preventing chronic diseases for a healthier Europe: the case of Rheumatic and musculoskeletal diseases”;
- EUMUSC.NET Project (2009-2013, co-financed by European Commission Community Action in the Field of Heath 2008-2013);
- Hungarian EU Presidency conference "Burden of rheumatoid and musculoskeletal diseases (RMDs): Challenges in work capacity and prevention of disability in the EU" (2011);
- Belgian EU Presidency conference on rheumatic and musculoskeletal diseases (2010)Other activities
None declared
Meetings
Meetings
4 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 12 Jan 2021 Location Brussels, virtual meeting Subject Presentation of EULAR and exchange of views on the challenges of people and patients with RMDs in the context of the Pharmaceutical Strategy Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Karolina Herbout-Borczak (Cabinet member)
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Date 15 Oct 2020 Location Brussels Subject Rheumatic Muskuloskeletal Diseases, occupational health and safety DG Employment, Social Affairs and Inclusion Attending - Joost Korte (Director-General)
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Date 29 Nov 2016 Location Brussels Subject Health and Safety at work Cabinet Cabinet of Commissioner Marianne Thyssen Portfolio Employment, Social Affairs, Skills and Labour Mobility Attending - Inge Bernaerts (Cabinet member)
Other Lobbyists -
Date 13 Oct 2016 Location Brussels Subject Prevention and diagnosis of rheumatic diseases, co-operation EULAR - Commission Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
- Vytenis Andriukaitis (Commissioner)