Overview
Lobbying Costs
None declared
Financial year: Jan 2014 - Dec 2014
Lobbyists (Full time equivalent)
1 Fte (3)
Lobbyists with EP accreditation
0
High-level Commission meetings
4
Lobbying Costs over the years
-
Info
European League Against Rheumatism (EULAR)
EU Transparency Register
89158218867-92 First registered on 01 Jun 2012
Goals / Remit
The European League Against Rheumatism (EULAR) is the organisation which represents the patient, health professional and scientific societies of rheumatology of all the European nations. EULAR endeavours to stimulate, promote, and support the research, prevention, treatment and rehabilitation of rheumatic diseases. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal systems.
Main EU files targeted
Public health policies (e.g. chronic diseases, active and healthy ageing, cross-border health care, mobility of health professionals, etc)
Disability policies and legislation (e.g. Disability strategy, implementation of the UN Convention on the rights of people with disabilities, disability and work, etc.);
Research and innovation policies (e.g. Horizon 2020, data protection)Address
Head Office
Seestrasse, 240
Kilchberg 8802
SWITZERLANDEU Office
Av. des Arts 39
Brussels 1040
BELGIUM -
People
Total lobbyists declared
3
Employment time Lobbyists 50% 1 25% 2 Lobbyists (Full time equivalent)
1
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 28 Apr 2015
Name Start date End Date Neil BETTERIDGE 14 Jan 2020 01 Feb 2021 Neil BETTERIDGE 17 Nov 2018 16 Nov 2019 Neil BETTERIDGE 05 Oct 2017 05 Oct 2018 Complementary Information
None declared
Person in charge of EU relations
Mr Heinz Marchesi (Executive Director)
Person with legal responsibility
Mr Heinz Marchesi (Executive Director)
-
Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
Biomedical Research Alliance
International League of Associations for Rheumatology (ILAR)
The Bone and Joint Decade
European Musculoskeletal Health Alliance
European Union of Medical SpecialistsMember organisations
Albanian Society of Rheumatology(0),
Armenian Rheumatological Association(0),
Österreichische Gesellschaft für Rheumatologie & Rehabilitation(0),
Belarusian Scientific Rheumatological Society(0),
Royal Belgian Society of Rheumatology(0),
Rheumatology Association of Bosnia and Herzegovina(0),
Bulgarian Society for Rheumatology(0),
Croatian Society for Rheumatology(0),
Cyprus Society for Rheumatology(0),
Czech Rheumatological Society(0),
The Danish Society of Rheumatology(0),
Estonian Association for Rheumatology(0),
Finnish Society of Rheumatology(0),
Société Française de Rhumatologie(0),
Georgian Rheumatology Association(0),
Deutsche Gesellschaft für Rheumatologie e.V.(0),
Hellenic Society for Rheumatology(0),
Hungarian Association of Rheumatologists(0),
Icelandic Society of Rheumatology(0),
Irish Society for Rheumatology(0),
Israeli Society for Rheumatology(0),
Società Italiana di Reumatologia(0),
Latvian Association of Rheumatologists(0),
Lebanese Rheumatology Association(0),
Lithuanian Rheumatologists Association(0),
Macedonian Association against Rheumatism(0),
Maltese Society for Rheumatology(0),
Moldavian League against Rheumatism(0),
Montenegro Rheumatologists Association(0),
Dutch Society for Rheumatology(0),
Norwegian Society for Rheumatology(0),
Polish Society for Rheumatology(0),
Portuguese Society of Rheumatology(0),
Romanian Society of Rheumatology(0),
Association of Rheumatologists of Russia(0),
Associazione San Marinese di Reumatologia(0),
Rheumatology Association of Serbia(0),
Slovak Rheumatological Society(0),
Slovenian Medical Society(0),
Spanish Society for Rheumatology(0),
Swedish Society for Rheumatology(0),
Schweizerische Gesellschaft für Rheumatologie(0),
Turkish League Against Rheumatism(0),
Ukrainian Association of Rheumatologists(0),
The British Society for Rheumatology(0),
Österreichische Rheumaliga(0),
CLAIR(0),
ReumaNet vzw(0),
Bulgarian Organisation for Patients with Rheumatic Diseases(0),
Croatian League against Rheumatism(0)Cyprus League against Rheumatism(0),
Czech League Against Rheumatism(0),
The Danish Rheumatism Association(0),
Estonian Rheumatism Association(0),
The Finnish Rheumatism Association(0),
Association Française de Lutte Anti-Rhumatismale(0),
Deutsche Rheuma-Liga Bundesverband e.V.(0),
Hellenic League Against Rheumatism(0),
Magyar Reumabetegek Egyesülete(0),
Icelandic League against Rheumatism(0),
Arthritis Ireland(0),
INBAR Foundation(0),
Associazione Nazionale Malati Reumatici(0),
Latvian Association of Bone, Joint and Connective Tissue Diseases’ Pat(0),
Lithuanian Arthritis Association(0),
NGO NORA Non-governmental Organization for Rheumatism & Arthritis(0),
Arthritis and Rheumatism Association Malta(0),
Association for Helping Persons with Rheumatic Diseases(0),
Norwegian League Against Rheumatism(0),
Polish Rheuma Federation(0),
Portuguese League Against Rheumatism(0),
Romanian League Against Rheumatism(0),
N.A.D.E.G.D.A National Public Organisation of disabled people(0),
The Association of Rheumatic Diseases Patients of the Republic of Serb(0),
Slovak League against Rheumatism(0),
Slovenian Rheumatism Association(0),
Spanish League Against Rheumatism(0),
Swedish Rheumatism Association(0),
Rheumaliga Schweiz(0),
Turkish Rheumatism Society(0),
Arthritis and Musculoskeletal Alliance(0),
Österreichische Gesellschaft für rheumatologische Gesundheitsberufe(0),
Belgian Health Professionals in Rheumatology vzw/asbl(0),
Bulgarian Association of Health Professionals in Rheumatology(0),
cosmosrheuma+(0),
Czech Association of Health Professionals in Rheumatology(0),
Danish Interdisciplinary Forum(0),
The MSD-professionals of Finland SUOMEN TULESAMMATTILAISET R.Y.(0),
The Irish Rheumatology Health Professionals Society(0),
Israeli Rheumatology Multi-Disciplinary Forum(0),
Associazione Italiana Operatori Reumatologici Professionali - AIORP(0),
Netherlands Health Professionals in Rheumatology(0),
Norwegian Interdisciplinary Organisation in Rheumatology (NIOR)(0),
Polish Society of Health Professionals in Rheumatology(0),
Romanian Association of Medical Partners for Rheumatology (RAMPR)(0),
Serbian Association of Health Professionals in Rheumatology(0),
OPENREUMA(0),
The Swedish Rheuma Forum SveReFo(0),
Health Professionals in Rheumatology Switzerland(0),British Health Professionals in Rheumatology(0) -
Financial Data
Closed financial year
Jan 2014 - Dec 2014
Lobbying costs for closed financial year
None declared
Other financial info
None declared
-
EU Structures
Groups (European Commission)
None
ACC
None
Groups (European Parliament)
None
Communication activities
None
Other activities
None declared
Meetings
Meetings
4 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
-
Date 12 Jan 2021 Location Brussels, virtual meeting Subject Presentation of EULAR and exchange of views on the challenges of people and patients with RMDs in the context of the Pharmaceutical Strategy Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Karolina Herbout-Borczak (Cabinet member)
-
Date 15 Oct 2020 Location Brussels Subject Rheumatic Muskuloskeletal Diseases, occupational health and safety DG Employment, Social Affairs and Inclusion Attending - Joost Korte (Director-General)
-
Date 29 Nov 2016 Location Brussels Subject Health and Safety at work Cabinet Cabinet of Commissioner Marianne Thyssen Portfolio Employment, Social Affairs, Skills and Labour Mobility Attending - Inge Bernaerts (Cabinet member)
Other Lobbyists -
Date 13 Oct 2016 Location Brussels Subject Prevention and diagnosis of rheumatic diseases, co-operation EULAR - Commission Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Paula Duarte Gaspar (Cabinet member)