European Liver Patients' Association

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Registration as it was on 27 Nov 2023
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Overview

Lobbying Costs

500,000€ - 599,999€

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

7.75 Fte (10)

Lobbyists with EP accreditation

5

High-level Commission meetings

6

Lobbying Costs over the years

  • Info

    European Liver Patients' Association   (ELPA)

    EU Transparency Register

    89292219623-93 First registered on 13 Sep 2012

    Goals / Remit

    ELPA’s aim is to promote the interests of people with liver disease and in particular: to highlight the size of the problem; to promote awareness and prevention; to address the low profile of liver disease as compared to other areas of medicine such as heart disease; to share experience of successful initiatives; to work with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonised across Europe to the highest standards. Our Mandate:ELPA emerged from a desire amongst European liver patient groups to share their experiences of the often very different approaches adopted in different countries. In June 2004, 13 patient groups from 10 European and Mediterranean Basin countries met to create the association. ELPA was formally launched in Paris on April 14th 2005 during the annual conference of the European Association for the Study of the Liver (EASL) and now has 32 members from 25 countries. Our ultimate goal is a world without liver diseases.

    Main EU files targeted

    All aspects related to health, cancer, health statistics, research, development for health, cross-border healthcare, access to healthcare, new digital aspects of health, data privacy issues, clinical and pharmaceutical development.

    Address

    Head Office
    Bastion Tower levels 11 & 12 Place du Champ de Mars, 1050 Brussels Begium
    Brussels 1050
    BELGIUM
    EU Office
    Bastion Tower levels 11 & 12 Place du Champ de Mars, 1050 Brussels Begium
    Brussels 1050
    BELGIUM

    Website

  • People

    Total lobbyists declared

    10

    Employment timeLobbyists
    100%5
    75%2
    50%2
    25%1

    Lobbyists (Full time equivalent)

    7.75

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    5 accreditations were / are live (in bold) for the selected state of 28 May 2024

    Name Start date End Date
    Beatrice CREDI 20 Jan 2024 17 Jan 2025
    Anastassiya SEMEISKAYA 15 Feb 2024 14 Feb 2025
    Veronika VŠETI?KOVA 20 Jan 2024 17 Jan 2025
    Milan MISHKOVIKJ 23 Jan 2024 17 Jan 2025
    Marko KORENJAK 23 Jan 2024 17 Jan 2025
    Ms Veronika VŠETIČKOVA 20 Jan 2024 26 Apr 2024
    Beatrice CREDI 12 Jan 2023 12 Jan 2024
    Milan MISHKOVIKJ 12 Jan 2023 12 Jan 2024
    Marko KORENJAK 12 Jan 2023 12 Jan 2024
    Ms Veronika VŠETIČKOVA 07 Oct 2022 07 Oct 2023
    Milan MISHKOVIKJ 18 Jan 2022 12 Jan 2023
    Marko KORENJAK 18 Jan 2022 12 Jan 2023
    Beatrice CREDI 21 Dec 2021 21 Dec 2022
    Milan MISHKOVIKJ 05 Jan 2021 05 Jan 2022
    Ms Veronika VSETICKOVA 05 Jan 2021 05 Jan 2022
    Marko KORENJAK 05 Jan 2021 05 Jan 2022
    Milan MISHKOVIKJ 01 Nov 2019 31 Oct 2020
    Marko KORENJAK 08 Oct 2019 08 Oct 2020

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    EMA PCWP
    https://www.ema.europa.eu/en/partners-networks/patients-consumers/eligible-patients-consumers-organisations

    EMA PRAC
    https://www.ema.europa.eu/en/committees/pharmacovigilance-risk-assessment-committee-prac

    EASL Policy & Public Health Committee
    https://easl.eu/easl/leadership-and-governance/policy-public-health-advocacy-committee/#:~:text=The%20mission%20of%20the%20Policy,public%20affairs%20goals%20and%20objectives.

    ECDC Advisory Forum
    https://www.ecdc.europa.eu/en/about-ecdc/who-we-are/governance/advisory-forum/observers

    ECDC working group on monitoring hepatitis B and C in the EU
    https://www.ecdc.europa.eu/sites/default/files/documents/hepatitis-B-C-monitoring-responses-hepatitis-B-C-epidemics-EU-EEA-Member-States-2019.pdf

    WHO EURO Collaborating Committee on TB, HIV, and viral hepatitis
    https://www.who.int/europe/groups/regional-collaborating-committee-on-accelerated-response-to-tuberculosis-hiv-and-viral-hepatitis-(rcc-thv)/about

    HERA Civil Society Forum
    https://health.ec.europa.eu/health-emergency-preparedness-and-response-hera/advisory-forum_en#civil-society-forum

    Member organisations

    1. VHC - Vlaams Hepatitis Contactpunt,
    2. The Chronic Viral Hepatitis Patients Association, "B18",
    3. Leverforeningen,
    4. CAHIV,
    5. Cyprus Liver Patients Association,
    6. Association of Liver Patients' Care - ALPC,
    7. The Finnish Kidney and Liver Association,
    8. Fédération SOS hépatites,
    9. Association for health education, prevention and better treatment – HEPTA,
    10. Hepar Centar – Bitola,
    11. Hungarian Association of Chronic Hepatitis Patients - VIMOR
    12. Hetz - Israeli Association For The Health Of The Liver,
    13. Star of Hope Foundation,
    14. SOS Hépatites Portugal,
    15. APAH-RO,
    16. Liver patients association HRONOS,
    17. HEP HELP KLUB,
    18. Sanca pre pecen,
    19. Slovenian Association of patients suffering from hepatitis SLOVENIA HEP,
    20. Catalan Association of Hepatitis Patients - ASSCAT,
    21. National Federation of Liver Patients and Transplanted-FNETH,
    22. Riksföreningen Hepatit C - RHC,
    23. HEPYAŞAM - Living with Hepatitis Association
    24. British Liver Trust,
    25. Liver4Life,
    26. proLAR Nett,
    27. United against Hepatitis,
    28. Humanitarian action,
    29. HepCPositive,
    30. Hepatitis C Cured Patient Association,
    31. Hepatitis C Partnership.
    32. Spanish Patient Organization Lysosomal Acid Lipase Deficiency (AELALD)

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    500,000€ - 599,999€

    Major contributions in closed year

    TypeNameAmount
    Grant EU Commission 72,000€

    Major contributions in current year

    TypeNameAmount
    Grant EU Commission 187,000€

    Intermediaries for closed year

    NameAmount
    moore stephens, belgium 10,000€ - 24,999€

    Intermediaries for current year

    Name
    moore stephens, belgium

    Closed year Costs

    500,000€ - 599,999€

    Other financial info

    EU grants were received because we are Consortium Partners in 18 EU Projects.

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Cancer

    Communication activities

    White paper on patient' perspective, high-level events in EP and Commission, good practices, conferences. Additionally, we are a part of 18 EU Medical research projects Horizon2020 and 1 project from the EITHealth platform and we are part of three additional projects which are now in an approval stage. We are constantly collaborating with »Friends of Liver » MEP group and have just started collaborating with European Kidney Patients' Federation who are collaborating with MEP group »Kidney Health«.

    Other activities

    None declared

  • Meetings

    Meetings

    6 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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