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Overview
Lobbying Costs
1,375,000€
Financial year: Jan 2012 - Dec 2012
Lobbyists (Full time equivalent)
None declared
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
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Info
European Multiple Sclerosis Platform (EMSP)
EU Transparency Register
431655212354-82 First registered on 29 Nov 2013
Goals / Remit
Founded in 1989, EMSP is the umbrella organisation for 39 MS societies from 34 European countries. EMSP represents their interests at the European level and works to achieve its goals of high quality equitable treatment and support for persons with multiple sclerosis throughout Europe.
EMSP's mission
Exchanging and disseminating information relating to MS considering all issues relevant for people affected by MS.
Encouraging research of all kinds that is appropriate to MS through recognised medical and other organisations.
Promoting the development of join action programmes with the participation of national MS societies in Europe, aiming at improving the quality of their activities and services.
Acting as a focal point for liaison with the institutions of the European Union (EU), the Council of Europe and other European organisations, in order to propose new measures to advance the rights of persons with disabilities and to ensure their full and effective participation in society.
EMSP’s vision of a world without MS is intended to be both aspirational and also inspirational – i.e. to encourage stakeholders, decision-makers, clinicians and researchers not to accept the current situation where many of the 700,000 people with MS in Europe are disabled and disadvantaged by their condition but instead to strive for prevention, cure or eradication of the condition.
The mission is intended to ensure that EMSP’s activities and programmes lead to an escalation of effective scientific research that will ultimately result in primary prevention of the condition and significantly improved treatment that in turn will reduce disability and delay or halt progression of the condition.
EMSP’s role is to help minimise the health inequalities that result from the impact of MS by supporting and collaborating with its 38 member societies to ensure that people with MS do have access to the treatment, care and employment opportunities that enable them to maximise their wellbeing, independence, dignity, mobility and participation in society.Main EU files targeted
Address
Head Office
Rue Auguste Lambiotte 144
Brussels 1030
BELGIUM -
People
Total lobbyists declared
None declared
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 18 Aug 2014
Name Start date End Date Ms Elisabeth KASILINGAM 23 Jul 2020 23 Jul 2021 Mr Mate Laszlo TAGAJ 23 Nov 2018 23 Nov 2019 Ms Elisabeth KASILINGAM 21 Nov 2018 21 Nov 2019 Ms Andreea Antonovici 21 Feb 2017 14 Feb 2018 Ms Maggie Alexander 12 Mar 2016 22 Feb 2017 Mr Yves Brand 17 Nov 2015 12 Nov 2016 Ms Andreea Antonovici 09 Sep 2015 07 Sep 2016 Ms Maggie Alexander 04 Nov 2014 30 Oct 2015 Mrs Maggie Alexander 04 Nov 2014 27 Jan 2015 Ms Andreea Antonovici 26 Aug 2014 20 Aug 2015 Complementary Information
None declared
Person in charge of EU relations
None declared
Person with legal responsibility
Mr Thalheim Christoph (Deputy CEO)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
None declared
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Financial Data
Closed financial year
Jan 2012 - Dec 2012
Lobbying costs for closed financial year
1,375,000€
EU grant income for closed financial year
277,340 €
Other financial info
None declared
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
None declared
Communication activities
None declared
Other activities
None declared
Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 11 Oct 2019 Location Brussels Subject Health programme Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Arunas Vinciunas (Cabinet member)