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Overview
Lobbying Costs
850,000€
Financial year: Jan 2017 - Dec 2017
Lobbyists (Full time equivalent)
4.25 Fte (5)
Lobbyists with EP accreditation
2
High-level Commission meetings
1
Lobbying Costs over the years
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Info
European Multiple Sclerosis Platform (EMSP)
EU Transparency Register
431655212354-82 First registered on 29 Nov 2013
Goals / Remit
Established over 30 years ago, the European Multiple Sclerosis Platform (EMSP), is now one of the most active patients organisations on the European health scene. EMSP is the umbrella organisation representing 40 national member societies from 35 European countries. The organisation is acting on behalf of its members at European level and its efforts are directed towards achieving high quality equitable treatment and support for people with multiple sclerosis throughout Europe.
EMSP’s mission is to “improve the quality of life of more than 750,000 people living with MS in Europe” and this can only be achieved by acting as a link between its member societies and the European MS community. EMSP is working closely with the MS community across the EU, including people with MS, advocacy organisations, healthcare professionals and researchers, alongside policy-makers in order to encourage meaningful change.Main EU files targeted
EMSP’s policy work is shaped by its over-arching goal of involvement of people with MS in all areas of EU policy, programmes and projects with an impact on health and disability. The European social and health policy landscape is becoming increasingly focused on broad themes and alliances, rather than on single conditions. EMSP will work closely to provide expert policy support and use MS as an exemplar of long-term, disabling, neurological conditions.
EMSP’s activities, designed to support the defined policy-making and advocacy work in 2018, are part of the key operational objectives of the organisation in the year to come. As such, consolidating our relations to the EU Institutions and agencies, will help EMSP:
1. Strengthen its role on the EU health scene and make MS, among other neurological diseases, a priority on the EU Health Agenda.
2. Improve communication with member societies, as close communication with members of the EP is better achieved with the involvement of the actors from the national field.
3. Speak with one voice on behalf of people with MS in Europe.
All our actions come as a consequence of our close consultations with our members and our activities are designed to improve the quality of life of people with MS in Europe. Recognising the value of our actions will make EMSP one of the key players in the field.Address
Head Office
Rue Auguste Lambiotte 144/8
Brussels 1030
BELGIUM -
People
Total lobbyists declared
5
Employment time Lobbyists 100% 3 75% 1 50% 1 Lobbyists (Full time equivalent)
4.25
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
2 accreditations were / are live (in bold) for the selected state of 20 Jan 2019
Name Start date End Date Ms Elisabeth KASILINGAM 23 Jul 2020 23 Jul 2021 Mr Mate Laszlo TAGAJ 23 Nov 2018 23 Nov 2019 Ms Elisabeth KASILINGAM 21 Nov 2018 21 Nov 2019 Ms Andreea Antonovici 21 Feb 2017 14 Feb 2018 Ms Maggie Alexander 12 Mar 2016 22 Feb 2017 Mr Yves Brand 17 Nov 2015 12 Nov 2016 Ms Andreea Antonovici 09 Sep 2015 07 Sep 2016 Ms Maggie Alexander 04 Nov 2014 30 Oct 2015 Mrs Maggie Alexander 04 Nov 2014 27 Jan 2015 Ms Andreea Antonovici 26 Aug 2014 20 Aug 2015 Complementary Information
O
Person in charge of EU relations
Ms Elisabeth Kasilingam (Managing Director)
Person with legal responsibility
Mr Pedro Carrascal (President)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
EMSP is a member of:
The European Federation for Neurological Associations (EFNA)
The European Medicines Agency’s Patient and Consumer Working Party
The EUnetHTA
The European Patients’ Forum
The European Disability ForumMember organisations
http://www.emsp.org/members/
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Financial Data
Closed financial year
Jan 2017 - Dec 2017
Lobbying costs for closed financial year
850,000€
Other financial info
None declared
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
None
Communication activities
EMSP activities for 2019 align closely with the priorities set out in the EU Health Programme, as it seeks to increase awareness of early diagnosis, sharing evidence-based good practice, establishing an increase in medical expertise and pooling patient data for better healthcare outcomes. It focuses on the specific objectives of promoting health, contributing to more innovative and efficient health systems and facilitating better and safer healthcare for patients.
EMSP will focus on:
1. The exchange of knowledge and good practice in the management of chronic diseases, with a focus this year on a better understanding of Paediatric MS, look at the unmet needs of people with MS and improve access to treatment through our advocacy initiatives ;
2. Progressing the pooling and sharing of clinical, medical and patient-reported outcome data.
3. The continued implementation of the MS Nurse PRO programme focusing on the need for better trained MS Nurses through online training and support: that enhances the medical expertise of nurses on MS. EMSP will map out the plan for the development of an MS Nurse Federation.
4. The development of good practice and effective information on access, treatment and costs/benefit of investment in MS care and support. EMSP will disseminate the information to our relevant partners and member societies.
5. The promotion of better access to workplace for persons with disabilities and better working conditions by working closely with the EU institutions, such as the EU.Other activities
None declared
Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 11 Oct 2019 Location Brussels Subject Health programme Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Arunas Vinciunas (Cabinet member)