Parkinson's Europe

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Registration as it was on 19 Mar 2024
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The following entries are flagged as duplicates of this organisation: 04778646924-03

Overview

Lobbying Costs

25,000€ - 49,999€

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

0.5 Fte (2)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    Parkinson's Europe   (PE)

    EU Transparency Register

    073833319732-61 First registered on 01 Dec 2015

    Goals / Remit

    Our vision is that people with Parkinson's and their families have access to the highest standards of treatment, support and care they need to live a full and comfortable life.

    We work and campaign with people with Parkinson’s, their caregivers, families and supporters across Europe to ensure their voices are heard and listened to. We do this by advocating, raising awareness and working with other global Parkinson’s organisations to provide current information, share good practices, and highlight research that will benefit the whole Parkinson's community.

    Main EU files targeted

    One of Parkinson's Europe's strategic aims is to increase political awareness of Parkinson’s as a priority health challenge at the European and national levels, and build political support for concrete policy change.

    In particular, Parkinson's Europe aims to influence the following EU policies and initiatives:
    - EU health policy
    - Pharmaceutical Strategy
    - revision of the basic pharmaceutical legislation
    - Healthier Together (initiative on non-communicable diseases)
    - Farm to Fork and other initiatives concerning the use of pesticides

    Address

    Head Office
    Lynwood House Crofton Road
    Orpington BR6 8QE
    UNITED KINGDOM
    EU Office
    C/o Russell Patten 42 Rue Lincoln
    Bruxelles 1180
    BELGIUM

    Website

  • People

    Total lobbyists declared

    2

    Employment timeLobbyists
    25%2

    Lobbyists (Full time equivalent)

    0.5

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    European Patients' Forum (EPF): https://www.eu-patient.eu/members/

    European Federation of Neurological Associations (EFNA): https://www.efna.net/members/

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    25,000€ - 49,999€

    Major contributions in closed year

    None declared

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    25,000€ - 49,999€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    N/A

    Communication activities

    Parkinson's Europe website advocacy page: https://www.parkinsonseurope.org/get-involved/advocacy/

    Parkinson's Europe political manifesto: https://www.parkinsonseurope.org/media/3186/parkinson-s-europe-a-political-manifesto-for-parkinson-s-disease-in-europe.pdf

    Parkinson's Europe website news updates:
    - https://www.parkinsonseurope.org/latest/news/eu-officially-launches-healthier-together-initiative-on-non-- communicable-diseases/
    - https://www.parkinsonseurope.org/latest/news/french-presidency-kicks-off-with-high-ambitions-for-health/
    - https://www.parkinsonseurope.org/latest/news/for-the-first-time-eu-will-take-targeted-action-on-neurological-diseases/

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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