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Overview
Lobbying Costs
18,000€
Financial year: Jan 2014 - Dec 2014
Lobbyists (Full time equivalent)
0.5 Fte (2)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
European Parkinson's Disease Association (EPDA)
EU Transparency Register
073833319732-61 First registered on 01 Dec 2015
Goals / Remit
Our vision is to enable all people with Parkinson’s to live a full life while supporting the search for a cure.
Our mission is to become the leading voice for Parkinson’s in Europe by providing innovative leadership, information and resources to all Parkinson’s stakeholders.
We will achieve our mission through our core activities:
We engage - Through discussion and research, we engage people with Parkinson’s and their carers, our member organisations, healthcare professionals, European policymakers, and the treatment industry across Europe to understand gaps in care and develop solutions to unmet needs
We facilitate - We enable communications and discussions between Parkinson’s stakeholders to champion collaborations and partnerships that directly benefit people with Parkinson’s and their families
We inform - We provide up-to-date information, research and resources for Parkinson’s stakeholders to educate and increase awareness throughout the disease journey
We unite - We bring together the Parkinson’s community – particularly national Parkinson’s organisations (our members) – to learn from each other and share good practices
We champion - We raise awareness of – and provide an authoritative voice on – the impact of Parkinson’s across Europe with European decision makers.Main EU files targeted
To engage with our key decision maker stakeholders throughout 2016, 2017 and 2018 by:
– Continued calls and meetings with the Commission, Council and Parliament representatives to execute our advocacy strategy
– Re-establishing the MEP Support Network
– Collaborating with other European umbrella health-related organisations to develop a neurodegenerative-based written declaration and further engagement round with Commission/MEPs
– planning and executing an EU event in the European Parliament to be held in February 2016 with key stakeholder support
– collaborate with EPDA members/national coalitions to determine the possibility of working towards an EC Joint Action
– hold an EPDA awareness event in the EP in April to celebrate World PD Day and to grow MEP support
– continue ongoing interaction and engagement with our key target EU stakeholdersAddress
Head Office
1 Cobden Road
Sevenoaks
Kent TN13 3UB
UNITED KINGDOM -
People
Total lobbyists declared
2
Employment time Lobbyists 25% 2 Lobbyists (Full time equivalent)
0.5
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Ms Lizzie Graham (Director of Fundraising and Global Communications)
Person with legal responsibility
Ms Lizzie Graham (Director of Fundraising and Global Communications)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
European Patients' Forum (EPF)
Member organisations
None declared
-
Financial Data
Closed financial year
Jan 2014 - Dec 2014
Lobbying costs for closed financial year
18,000€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
None
ACC
None
Groups (European Parliament)
None
Communication activities
None
Other activities
None declared
- Meetings
Meetings
None declared
- Meetings