Parkinson's Europe

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Registration as it was on 22 Dec 2015
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The following entries are flagged as duplicates of this organisation: 04778646924-03

Overview

Lobbying Costs

18,000€

Financial year: Jan 2014 - Dec 2014

Lobbyists (Full time equivalent)

0.5 Fte (2)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    European Parkinson's Disease Association   (EPDA)

    EU Transparency Register

    073833319732-61 First registered on 01 Dec 2015

    Goals / Remit

    Our vision is to enable all people with Parkinson’s to live a full life while supporting the search for a cure.

    Our mission is to become the leading voice for Parkinson’s in Europe by providing innovative leadership, information and resources to all Parkinson’s stakeholders.

    We will achieve our mission through our core activities:

    We engage - Through discussion and research, we engage people with Parkinson’s and their carers, our member organisations, healthcare professionals, European policymakers, and the treatment industry across Europe to understand gaps in care and develop solutions to unmet needs
    We facilitate - We enable communications and discussions between Parkinson’s stakeholders to champion collaborations and partnerships that directly benefit people with Parkinson’s and their families
    We inform - We provide up-to-date information, research and resources for Parkinson’s stakeholders to educate and increase awareness throughout the disease journey
    We unite - We bring together the Parkinson’s community – particularly national Parkinson’s organisations (our members) – to learn from each other and share good practices
    We champion - We raise awareness of – and provide an authoritative voice on – the impact of Parkinson’s across Europe with European decision makers.

    Main EU files targeted

    To engage with our key decision maker stakeholders throughout 2016, 2017 and 2018 by:

    – Continued calls and meetings with the Commission, Council and Parliament representatives to execute our advocacy strategy
    – Re-establishing the MEP Support Network
    – Collaborating with other European umbrella health-related organisations to develop a neurodegenerative-based written declaration and further engagement round with Commission/MEPs
    – planning and executing an EU event in the European Parliament to be held in February 2016 with key stakeholder support
    – collaborate with EPDA members/national coalitions to determine the possibility of working towards an EC Joint Action
    – hold an EPDA awareness event in the EP in April to celebrate World PD Day and to grow MEP support
    – continue ongoing interaction and engagement with our key target EU stakeholders

    Address

    Head Office
    1 Cobden Road
    Sevenoaks
    Kent TN13 3UB
    UNITED KINGDOM
  • People

    Total lobbyists declared

    2

    Employment timeLobbyists
    25%2

    Lobbyists (Full time equivalent)

    0.5

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Ms Lizzie Graham (Director of Fundraising and Global Communications)

    Person with legal responsibility

    Ms Lizzie Graham (Director of Fundraising and Global Communications)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    European Patients' Forum (EPF)

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2014 - Dec 2014

    Lobbying costs for closed financial year

    18,000€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    None

    ACC

    None

    Groups (European Parliament)

    None

    Communication activities

    None

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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