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Overview
Lobbying Costs
15,168€
Financial year: Jan 2015 - Dec 2015
Lobbyists (Full time equivalent)
0.5 Fte (2)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
European Parkinson's Disease Association (EPDA)
EU Transparency Register
073833319732-61 First registered on 01 Dec 2015
Goals / Remit
Our vision is to enable all people with Parkinson’s to live a full life while supporting the search for a cure.
Our mission is to become the leading voice for Parkinson’s in Europe by providing innovative leadership, information and resources to all Parkinson’s stakeholders.
We will achieve our mission through our core activities:
We engage - Through discussion and research, we engage people with Parkinson’s and their carers, our member organisations, healthcare professionals, European policymakers, and the treatment industry across Europe to understand gaps in care and develop solutions to unmet needs
We facilitate - We enable communications and discussions between Parkinson’s stakeholders to champion collaborations and partnerships that directly benefit people with Parkinson’s and their families
We inform - We provide up-to-date information, research and resources for Parkinson’s stakeholders to educate and increase awareness throughout the disease journey
We unite - We bring together the Parkinson’s community – particularly national Parkinson’s organisations (our members) – to learn from each other and share good practices
We champion - We raise awareness of – and provide an authoritative voice on – the impact of Parkinson’s across Europe with European decision makers.Main EU files targeted
The EPDA actively engages with representatives of the EU institutions to promote political awareness of and drive support for action on Parkinson’s disease at the European level.
It closely monitors and provides input on the following EU policy issues:
1. EU support for data collection efforts
2. Access to medicines and long-term healthcare
3. Sustainability of healthcare systems
4. Health system and disease indicators
5. EU funding for research and multi-stakeholder projects
6. European Reference Networks for rare forms of and advanced-stage PD
7. Innovative treatments
To build support for its calls to action, the EPDA has regular meetings and contact with European Commission officials, MEPs in the European Parliament and country representatives sitting in the EU Council of Member States. It hosts events in the European Parliament (such as in April 2015), provides input to EU Consultations through its umbrella organisation partners dedicated to patient representative and neurological disease (the EPF and EFNA) and attends participates to different stakeholder forums for discussion. The EPDA also works to raise the concerns of its members to the European level, particularly when issues relating to timely diagnosis, treatment and care are cross-border.Address
Head Office
1 Cobden Road
Sevenoaks
Kent TN13 3UB
UNITED KINGDOM -
People
Total lobbyists declared
2
Employment time Lobbyists 25% 2 Lobbyists (Full time equivalent)
0.5
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Ms Lizzie Graham (Executive Director)
Person with legal responsibility
Ms Lizzie Graham (Director of Fundraising and Global Communications)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
European Patients' Forum (EPF)
Member organisations
None declared
-
Financial Data
Closed financial year
Jan 2015 - Dec 2015
Lobbying costs for closed financial year
15,168€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
None
ACC
None
Groups (European Parliament)
None
Communication activities
None
Other activities
None declared
- Meetings
Meetings
None declared
- Meetings