European AIDS Treatment Group

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Registration as it was on 06 Feb 2020
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Overview

Lobbying Costs

17,500€

Financial year: Jan 2018 - Dec 2018

Lobbyists (Full time equivalent)

0.75 Fte (3)

Lobbyists with EP accreditation

3

High-level Commission meetings

2

Lobbying Costs over the years

  • Info

    European AIDS Treatment Group   (EATG)

    EU Transparency Register

    49959188061-85 First registered on 13 Feb 2012

    Goals / Remit

    Mission statement:
    To achieve the fastest possible access to state-of-the-art medical devices & products and diagnostic tests that prevent or treat HIV infection or improve the quality of life for people living with HIV or at risk of HIV infection. In responding to HIV, the EATG will also consider diseases frequently seen as co-infections in persons living with HIV, as well as other health issues that increase the risk of HIV infection.
    The primary geographic focus of the EATG is the member states served by the World Health Organization Regional Office for Europe; however, the EATG will consider opportunities to collaborate with and support similar efforts in other parts of the world.
    History:
    The European AIDS Treatment Group (EATG) is a patient-led NGO that advocates for the rights and interests of people living with or affected by HIV/ AIDS and related co-infections within the WHO Europe region.
    Founded in 1992, the EATG is a network of more than 180 nationally-based members from 47 countries in Europe. Since its foundation, the EATG has been at the forefront of the development of the civil society response to the HIV/AIDS epidemic in Europe and has been defending the treatment-related interests of people living with HIV/AIDS and related co-infections such as Hepatitis C and Tuberculosis.
    Our members are PLHIV and representatives of different communities affected by HIV/AIDS and co-infections. EATG represents the diversity of more than 2.3 million people living with HIV (PLHIV) in Europe as well as those affected by HIV/AIDS and co-infections.
    Our activities focus on treatment literacy and treatment advocacy.
    Access to the best available treatments is a major goal for the EATG. This includes:
    • Access for all people who could benefit from the treatment, including so-called key-populations like people using drugs, women, children & youth, migrants, prisoners, people with hepatitis or tuberculosis co-infection, and other.
    • Access for patients in all stages of HIV infection (including first-line and salvage treatment options)
    • Access to treatment in all European countries (according to the WHO definition of the European region)
    Goals and objectives:
    • To enable people with HIV or at risk of HIV infection, and their advocates, to provide significant input into the process of developing, testing and approving HIV treatments
    • To advocate for best practices of care and treatment for all persons living with HIV/AIDS
    • To advocate for the rapid introduction of established and new HIV and co-infection (hepatitis and TB) treatments, medical devices & products and diagnostic tests
    • To promote the availability of appropriate information about HIV, Hepatitis and TB treatments for people with HIV, health care providers, and health policy makers
    • To advocate for changes in legislation and patent law, and for the medical evaluation of generic medicines that would promote the availability of lower-cost HIV treatments
    • To advocate for changes in legislation and policies affecting the health, rights and quality of life of people living with HIV

    Main EU files targeted

    The EU HIV/AIDS Civil Society Forum has been established by the European Commission as an informal working group to facilitate the participation of non-governmental organizations, including those representing people living with HIV/AIDS in policy development and implementation and in information-exchange activities. The CSF includes about 40 organizations from all over Europe. AIDS Action Europe (AAE) and EATG co-chair and provide support to the work of the EU HIV/AIDS Civil Society Forum, an informal advisory body to the European Commission.

    The European Testing Week is an initiative that was launched by HIV in Europe in 2013 to help more people to become aware of their HIV status.
    Initiative aims: The ultimate goal of European HIV-Hepatitis Testing Week is to make more people aware of their HIV and/ or hepatitis status and reduce late diagnosis by communicating the benefits of testing with the aim of supporting ongoing dialogue between all partners in the HIV, and hepatitis communities.

    Address

    Head Office
    Mettmanner Strasse, 24-26
    Duesseldorf 40233
    GERMANY
    EU Office
    Interoffices
    Avenue des Arts 56-4c
    Brussels 1000
    BELGIUM
  • People

    Total lobbyists declared

    3

    Employment timeLobbyists
    25%3

    Lobbyists (Full time equivalent)

    0.75

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    3 accreditations were / are live (in bold) for the selected state of 06 Feb 2020

    Name Start date End Date
    Chiara LONGHI 14 Mar 2024 13 Mar 2025
    Ann Isabelle von Lingen 23 Mar 2024 02 Oct 2024
    Ms Ann Isabelle von Lingen 23 Mar 2024 15 Apr 2024
    Ms Chiara LONGHI 14 Mar 2024 15 Apr 2024
    Mr Pieter VANHOLDER 15 May 2020 01 Jun 2021
    Ms Ann Isabelle von Lingen 13 May 2020 13 May 2021
    Mr Pierre VARASI 20 Feb 2020 20 Feb 2021
    Ms Marina COGNEE 20 Feb 2020 20 Feb 2021
    Mr Bojan CIGAN 20 Feb 2020 20 Feb 2021
    Giorgio BARBARESCHI 20 Feb 2020 20 Feb 2021
    Mr Pieter VANHOLDER 18 Apr 2019 01 May 2020
    Ms Ann Isabelle von Lingen 04 Apr 2019 04 Apr 2020
    Ms Fiona GREENHALGH 04 Apr 2019 12 Feb 2020
    Ms Ann Isabelle von Lingen 21 Feb 2017 17 Feb 2018

    Complementary Information

    We are a voluntary organisation with over 170 members from over 45 countries within and outside Europe.
    Our full-time policy officer works approx. 1/3 of her time on transparency register activities. Work on EC projects by EATG staff are not included in this calculation.
    The volunteer work of EATG members makes up the extra time spent.

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    EU Institutions and Executive Agencies
    DG Sanco – Health and Consumer Protection; DG Enterprise and Industry; DG Research; DG Trade; European Parliament; European Medicines Agency (EMA); European Monitoring Centre for Drugs and Drug Addiction (EMCDDA); European Centre for Disease Control (ECDC)

    Other EU Platforms
    EU Health Policy Forum; HIV/AIDS Civil Society Forum (CSF); Pharmaceutical Forum
    United Nations programs and organisations
    UNAIDS, the Joint United Nations Programme on HIV/AIDS; World Health Organisation (WHO), the directing and coordinating authority for health within the United Nations
    International Organisations
    International Organisation for Migration (IOM); International Harm Reduction Association (IHRA); International AIDS Society (IAS); International Planned Parenthood Federation (IPPF)

    HIV/AIDS Organisations and Networks
    AIDS Action Europe; AIDS Treatment Activists Coalition (ATAC); International Treatment Preparedness Coalition (ITPC); Global Network of People Living with HIV/AIDS (GNP+); International Community of Women Living with HIV/AIDS (ICW); Eastern European & Central Asian Union of PLWH Organisations (ECUO); Global Campaign for Microbicides (GCM); International AIDS Vaccine Initiative (IAVI); AIDS Vaccine Advocacy Coalition (AVAC); HIV in Europe; NAM; Terrence Higgins Trust (THT)

    Public Health Networks
    European Public Health Alliance (EPHA); Concord; EU Civil Society Contact Group; International Harm Reduction Development Program (IHRD); Eurasian Harm Reduction Network (EHRN); Health Action international (HAI); Médecins Sans Frontières (MSF), European Forum for Good Clinical Practice (EFGCP)

    EATG involvement via projects
    AIDS and Mobility Europe; AIDS Action Integration; European HIV Resistance Network; HIV/STI Prevention & Health Promotion among Migrant Sex Workers (TAMPEP); Health GAP (Global Access Project);

    Other European organisations
    European Patients’ Forum (EPF); International Alliance of Patient Organisations (IAPO); European Forum for Good Clinical Practice (EFGCP); European Federation of Pharmaceutical Industries and Associations (EFPIA); European Coalition of Positive People (ECPP); European AIDS Clinical Society (EACS); European Platform for Patients Organisations, Science and Industry (EPPOSI)

    Other organisations and networks
    Platform for International Cooperation on Undocumented Migrants (PICUM); Open Society Institute (OSI); Human Rights Watch (HRW); Correlation European Network Social Inclusion and Health; The Global Fund to fight AIDS, Tuberculosis and Malaria (GFTAM); Global Health Council; Association Internationale de la Mutualité (AIM); European Consumer’s Organisation (BEUC); Comité Permanent des Médecins Européens (CPME); the European Network on Drugs and Infections Prevention in Prison (ENDIPP)

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2018 - Dec 2018

    Lobbying costs for closed financial year

    17,500€

    EU grant income for closed financial year

    156,853 € (Source: H2020 IMI)

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    Commission expert group - Civil Society Forum on Drugs#E02681 #http://ec.europa.eu/transparency/regexpert/index.cfm?do=groupDetail.groupDetail&groupID=2681 #Member #C#Sub-group on Relations with International Institutions

    Groups (European Parliament)

    None

    Communication activities

    The EMERGE project (Evaluating mHealth technology in HIV to improve Empowerment and healthcare utilisation: Research and innovation to Generate Evidence for personalised care) is a mHealth platform to enable self-management of HIV in patients with stable disease. The platform will provide users with web based and mobile device applications which interface securely with relevant medical data and facilitate remote access to key healthcare providers. EATG will be acting as community partner, supporting standards for HIV care and guidelines for routine monitoring both in the involved countries and more broadly across the EU and potentially wider.
    ESTICOM – EUROPEAN SURVEYS AND TRAININGS TO IMPROVE MSM COMMUNITY HEALTH aims to strengthen the community response and raise awareness about the persisting legal, structural, political and social barriers hindering a more effective response to the syndemics of HIV, hepatitis viruses B and C, and other STI among MSM. The main activities include surveys among MSM (EMIS2017) and Community Based Health Workers (ECHOES) as well as a training programme for Community Health Workers intended to be adaptable for all EU countries.
    HIVACAR – EVALUATING A COMBINATION OF IMMUNE-BASED THERAPIES TO ACHIEVE A FUNCTIONAL CURE OF HIV INFECTION. The project aims to change the current paradigm of HIV treatment by obtaining a functional cure for HIV thanks to effectively targeting residual virus replication and viral reservoirs.
    EHVA – EUROPEAN HIV VACCINE ALLIANCE, AN EU PLATFORM FOR THE DISCOVERY AND EVALUATION OF NOVEL PROPHYLACTIC AND THERAPEUTIC VACCINE CANDIDATES. Project aims: To develop a Multidisciplinary Vaccine Platform (MVP) in the fields of prophylactic and therapeutic HIV vaccines. The MVP includes four components: 1) Discovery, 2) Immune Profiling, 3) Data Management, Integration and Down-Selection, and 4) Clinical Trials.
    EFOEUPATI - Ensuring the future of EUPATI beyond 2020 aims to ensure the sustainability of the results of the EUPATI project, to develop sustainable models of collaboration to ensure this, and put into place the infrastructure required for these to work, building on those already established under IMI-EUPATI.
    PARADIGM - Patients Active in Research and Dialogues for an Improved Generation of Medicines – This IMI project aims to provide a framework that allows structured, meaningful, sustainable and ethical patient engagement throughout three key decision-making points of the development of medicinal products: (i) the research priority setting; (ii) the design of clinical trials and (iii) the early dialogues with regulators and HTA bodies. The work builds upon previous initiatives such the European Patients’ Academy (EUPATI) and Patient Focused Medicine Development (PFMD).
    PREP IN EUROPE INITIATIVE is a partnership of European organisations (AIDES, AIDS Action Europe, AVAC, the European AIDS Treatment Group and NAM/Aidsmap) dedicated to increasing access to pre-exposure prophylaxis (PrEP) throughout the European region. It provides news and advice to help strengthen advocacy for PrEP throughout Europe. It seeks to to help organisations develop consistent policy demands for PrEP, and to provide networking opportunities for people working for PrEP access in different capacities throughout the continent.
    HIV OUTCOMES – Beyond Viral Suppression is a multi-stakeholder initiative developing and communicating expert, evidence based consensus recommendations for policy makers focused on the provision and delivery of high quality of care for people living with HIV (PLHIV). It seeks to include in the policy agenda, 1) health outcomes – effective prevention and treatment of co-morbidities; good mental and emotional well-being; and life expectancy comparable to the general population; 2) social outcomes –the absence of discrimination and reduction of stigma; securing employment; particularly among communities at high risk and with a high burden of HIV.

    Other activities

     Previous projects
    EUPATI was an IMI-funded consortium project, led by the European Patients' Forum, to educate patients and the lay public about how medicines’ R&D works. A consortium of 29 organisations is developing training courses, educational toolkits and a web-based library to provide objective and credible information about medicines R&D and how patients can get involved. EUPATI will cover seven languages in 12 countries.

    The main activity of work package 7 (WP7) was the preparation of a catalogue and a report on successful public private partnerships (PPPs) between patients’ organisations, industry and academia. The catalogue provides references and examples of successful collaborations that can be used as guidance for future partnerships, addressing the need for more active involvement of patient experts in medicines R&D.

    The previous consortium has developed a follow up of the project for further implementation of the activities after the end of the project.

    NEAT - European AIDS Treatment Network was a network of Excellence funded by the European Commission under the FP6 Programme. Its mission was to strengthen European HIV clinical research capacity. Nikos Dedes is the EATG project leader. The final version of the ECAB Review (which was funded by NEAT) has been published in June (see 3.5 The ECAB Review).

    ECRAN – European Communication on Research Awareness Needs project was designed to develop a portfolio of open educational resources, including a film, for the general population about the challenges raised by independent clinical research. EATG was a non-leading partner in 4 work packages of the project: Creation of a multi-language website, Production of an animated film on clinical trials, planning and development of communication tools and materials.

    EuroCoord was a Network of Excellence established by several of the biggest HIV cohorts and collaborations within Europe.
    Project aims: The overarching aim of EuroCoord was to use the scientific strengths of each collaboration to ensure that the best, most competitive research is performed. EuroCoord’s multidisciplinary approach allowed key areas of HIV research to be addressed, aimed at improving the management and life of HIV-infected.

  • Meetings

    Meetings

    2 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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