Overview
Lobbying Costs
1,622,874€
Financial year: Jan 2016 - Dec 2016
Lobbyists (Full time equivalent)
7 Fte (7)
Lobbyists with EP accreditation
1
High-level Commission meetings
2
Lobbying Costs over the years
-
Info
European AIDS Treatment Group (EATG)
EU Transparency Register
49959188061-85 First registered on 13 Feb 2012
Goals / Remit
Founded in 1992, the European AIDS Treatment Group (EATG) is a European network of nationally-based activists. As a European patient-led advocacy organisation, it has been at the forefront of the development of the civil society response to the HIV/AIDS epidemic in Europe. It represents and defends the treatment-related interests of people living with HIV and AIDS.
EATG is a voluntary organisation made up of over 150 members from over 45 different European countries. Our members are representatives of different communities affected by HIV/AIDS in Europe. Our activities focus on treatment activism and treatment advocacy.
In responding to HIV, the EATG also considers diseases frequently seen as co-infection in people with HIV, as well as other health issues that increase the risk of HIV.
The EATG’s primary geographic focus is the member states served by the World Health Organisation (WHO) Regional Office for Europe. However, the EATG does consider opportunities to collaborate with and support similar efforts in other parts of the world.
goals
1. To enable people with HIV or at risk of HIV infection and their supporters to significantly influence the development, testing and approving of HIV treatments. In this context, HIV treatment means medical devices, products and diagnostic tests that prevent or treat HIV infection and include continuous improvement in the quality of life of people affected.
2. To advocate for the best practices of care and treatment.
3. To advocate for rapidly available existing and new HIV treatment.
4. To promote the access of the latest available information about treatment legislation for patients, health care providers as well as policy makers.
5. To influence changes in legislation and patent law in order to support the lowest achievable cost for HIV treatment, including the support for generic medicine.
6. To monitor the changes in Health care systems and policies to ensure the rights and the quality of services influence positively the quality of life of people living with HIV/AIDS.Main EU files targeted
The EU HIV/AIDS Civil Society Forum has been established by the European Commission as an informal working group to facilitate the participation of non-governmental organizations, including those representing people living with HIV/AIDS in policy development and implementation and in information-exchange activities. The CSF includes about 40 organizations from all over Europe. AIDS Action Europe (AAE) and EATG co-chair and provide support to the work of the EU HIV/AIDS Civil Society Forum, an informal advisory body to the European Commission.
The European Testing Week is an initiative that was launched by HIV in Europe in 2013 to help more people to become aware of their HIV status.
Initiative aims: The ultimate goal of European HIV-Hepatitis Testing Week is to make more people aware of their HIV and/ or hepatitis status and reduce late diagnosis by communicating the benefits of testing with the aim of supporting ongoing dialogue between all partners in the HIV, and hepatitis communities.Address
Head Office
Mettmanner Strasse, 24-26
Duesseldorf 40233
GERMANYEU Office
Place Raymond Blyckaerts 13
Brussels 1050
BELGIUM -
People
Total lobbyists declared
7
Employment time Lobbyists 100% 7 Lobbyists (Full time equivalent)
7
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
1 accreditations were / are live (in bold) for the selected state of 21 Jun 2017
Name Start date End Date Chiara LONGHI 14 Mar 2024 13 Mar 2025 Ann Isabelle von Lingen 23 Mar 2024 02 Oct 2024 Ms Ann Isabelle von Lingen 23 Mar 2024 15 Apr 2024 Ms Chiara LONGHI 14 Mar 2024 15 Apr 2024 Mr Pieter VANHOLDER 15 May 2020 01 Jun 2021 Ms Ann Isabelle von Lingen 13 May 2020 13 May 2021 Mr Pierre VARASI 20 Feb 2020 20 Feb 2021 Ms Marina COGNEE 20 Feb 2020 20 Feb 2021 Mr Bojan CIGAN 20 Feb 2020 20 Feb 2021 Giorgio BARBARESCHI 20 Feb 2020 20 Feb 2021 Mr Pieter VANHOLDER 18 Apr 2019 01 May 2020 Ms Ann Isabelle von Lingen 04 Apr 2019 04 Apr 2020 Ms Fiona GREENHALGH 04 Apr 2019 12 Feb 2020 Ms Ann Isabelle von Lingen 21 Feb 2017 17 Feb 2018 Complementary Information
We are a voluntary organisation with over 170 members from over 45 countries within and outside Europe. The work of our volunteers counts for quite some FTE work as well.
Person in charge of EU relations
Mr Koen Block (Executive Director)
Person with legal responsibility
Ms Jackie Morton (chair)
-
Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
EU Institutions and Executive Agencies
DG Sanco – Health and Consumer Protection; DG Enterprise and Industry; DG Research; DG Trade; European Parliament; European Medicines Agency (EMA); European Monitoring Centre for Drugs and Drug Addiction (EMCDDA); European Centre for Disease Control (ECDC)
Other EU Platforms
EU Health Policy Forum; HIV/AIDS Civil Society Forum (CSF); Pharmaceutical Forum
United Nations programs and organisations
UNAIDS, the Joint United Nations Programme on HIV/AIDS; World Health Organisation (WHO), the directing and coordinating authority for health within the United Nations
International Organisations
International Organisation for Migration (IOM); International Harm Reduction Association (IHRA); International AIDS Society (IAS); International Planned Parenthood Federation (IPPF)
HIV/AIDS Organisations and Networks
AIDS Action Europe; AIDS Treatment Activists Coalition (ATAC); International Treatment Preparedness Coalition (ITPC); Global Network of People Living with HIV/AIDS (GNP+); International Community of Women Living with HIV/AIDS (ICW); Eastern European & Central Asian Union of PLWH Organisations (ECUO); Global Campaign for Microbicides (GCM); International AIDS Vaccine Initiative (IAVI); AIDS Vaccine Advocacy Coalition (AVAC); HIV in Europe; NAM; Terrence Higgins Trust (THT)
Public Health Networks
European Public Health Alliance (EPHA); Concord; EU Civil Society Contact Group; International Harm Reduction Development Program (IHRD); Eurasian Harm Reduction Network (EHRN); Health Action international (HAI); Médecins Sans Frontières (MSF), European Forum for Good Clinical Practice (EFGCP)
EATG involvement via projects
AIDS and Mobility Europe; AIDS Action Integration; European HIV Resistance Network; HIV/STI Prevention & Health Promotion among Migrant Sex Workers (TAMPEP); Health GAP (Global Access Project);
Other European organisations
European Patients’ Forum (EPF); International Alliance of Patient Organisations (IAPO); European Forum for Good Clinical Practice (EFGCP); European Federation of Pharmaceutical Industries and Associations (EFPIA); European Coalition of Positive People (ECPP); European AIDS Clinical Society (EACS); European Platform for Patients Organisations, Science and Industry (EPPOSI)
Other organisations and networks
Platform for International Cooperation on Undocumented Migrants (PICUM); Open Society Institute (OSI); Human Rights Watch (HRW); Correlation European Network Social Inclusion and Health; The Global Fund to fight AIDS, Tuberculosis and Malaria (GFTAM); Global Health Council; Association Internationale de la Mutualité (AIM); European Consumer’s Organisation (BEUC); Comité Permanent des Médecins Européens (CPME); the European Network on Drugs and Infections Prevention in Prison (ENDIPP)Member organisations
None declared
-
Financial Data
Closed financial year
Jan 2016 - Dec 2016
Lobbying costs for closed financial year
1,622,874€
EU grant income for closed financial year
104,667 € (Source: H2020 FP7)
Other financial info
Deficit due to usage of cash reserves according to German fiscal legislation.
Full financial reports available online: http://www.eatg.org/financial-documents-2016/ -
EU Structures
Groups (European Commission)
Think Tank on HIV brings together member state representatives, European Commission, WHO Europe, UNAIDS, ECDC, EMCCDA, UNODC
ACC
None
Groups (European Parliament)
None
Communication activities
HIV in Europe is a pan-European initiative initiated in Brussels in 2007. The initiative provides a European platform for exchange and activities to improve early diagnosis and earlier care of HIV across Europe. The initiative is directed by a Steering Committee composed of physicians, researchers, civil society actors, policy-makers of national and European public health institutions. It is increasingly collaborating with the Hepatitis community.
OptTEST builds on the multi-disciplinary and multi-stakeholder platform of HIV in Europe.
Project aims: Help reduce the number of undiagnosed people with HIV infection and newly diagnosed late presenters in the European regions and to promote timely treatment and care. The project is developing and piloting tools for assessing and implementing HIV testing programmes that are context-sensitive, ie. taking into account the various factors that impact on programme success. It will focus on priority regions and groups throughout Europe.
The EMERGE project (Evaluating mHealth technology in HIV to improve Empowerment and healthcare utilisation: Research and innovation to Generate Evidence for personalised care) is a mHealth platform to enable self-management of HIV in patients with stable disease. The platform will provide users with web based and mobile device applications which interface securely with relevant medical data and facilitate remote access to key healthcare providers. EATG will be acting as community partner, supporting standards for HIV care and guidelines for routine monitoring both in the involved countries and more broadly across the EU and potentially wider.Other activities
Previous projects
EUPATI was an IMI-funded consortium project, led by the European Patients' Forum, to educate patients and the lay public about how medicines’ R&D works. A consortium of 29 organisations is developing training courses, educational toolkits and a web-based library to provide objective and credible information about medicines R&D and how patients can get involved. EUPATI will cover seven languages in 12 countries.
The main activity of work package 7 (WP7) was the preparation of a catalogue and a report on successful public private partnerships (PPPs) between patients’ organisations, industry and academia. The catalogue provides references and examples of successful collaborations that can be used as guidance for future partnerships, addressing the need for more active involvement of patient experts in medicines R&D.
The previous consortium has developed a follow up of the project for further implementation of the activities after the end of the project.
NEAT - European AIDS Treatment Network was a network of Excellence funded by the European Commission under the FP6 Programme. Its mission was to strengthen European HIV clinical research capacity. Nikos Dedes is the EATG project leader. The final version of the ECAB Review (which was funded by NEAT) has been published in June (see 3.5 The ECAB Review).
ECRAN – European Communication on Research Awareness Needs project was designed to develop a portfolio of open educational resources, including a film, for the general population about the challenges raised by independent clinical research. EATG was a non-leading partner in 4 work packages of the project: Creation of a multi-language website, Production of an animated film on clinical trials, planning and development of communication tools and materials.
EuroCoord was a Network of Excellence established by several of the biggest HIV cohorts and collaborations within Europe.
Project aims: The overarching aim of EuroCoord was to use the scientific strengths of each collaboration to ensure that the best, most competitive research is performed. EuroCoord’s multidisciplinary approach allowed key areas of HIV research to be addressed, aimed at improving the management and life of HIV-infected.- Meetings
Meetings
2 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
-
Date 22 Jul 2019 Location Brussels Subject Access to medicines Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Alina Timofte (Cabinet member)
- Arunas Vinciunas (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
Other Lobbyists -
Date 28 Nov 2016 Location Brussels Subject EU and NGOs action on HIV, TB and Hepatitis Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
Other Lobbyists
- Meetings