European AIDS Treatment Group

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Registration as it was on 16 Apr 2019
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Overview

Lobbying Costs

24,269€

Financial year: Jan 2017 - Dec 2017

Lobbyists (Full time equivalent)

10 Fte (10)

Lobbyists with EP accreditation

2

High-level Commission meetings

2

Lobbying Costs over the years

  • Info

    European AIDS Treatment Group   (EATG)

    EU Transparency Register

    49959188061-85 First registered on 13 Feb 2012

    Goals / Remit

    Founded in 1992, the European AIDS Treatment Group (EATG) is a European network of nationally-based activists. As a European patient-led advocacy organisation, it has been at the forefront of the development of the civil society response to the HIV/AIDS epidemic in Europe. It represents and defends the treatment-related interests of people living with HIV and AIDS.

    EATG is a voluntary organisation made up of over 150 members from over 45 different European countries. Our members are representatives of different communities affected by HIV/AIDS in Europe. Our activities focus on treatment activism and treatment advocacy.

    In responding to HIV, the EATG also considers diseases frequently seen as co-infection in people with HIV, as well as other health issues that increase the risk of HIV.

    The EATG’s primary geographic focus is the member states served by the World Health Organisation (WHO) Regional Office for Europe. However, the EATG does consider opportunities to collaborate with and support similar efforts in other parts of the world.

    goals

    1. To enable people with HIV or at risk of HIV infection and their supporters to significantly influence the development, testing and approving of HIV treatments. In this context, HIV treatment means medical devices, products and diagnostic tests that prevent or treat HIV infection and include continuous improvement in the quality of life of people affected.

    2. To advocate for the best practices of care and treatment.

    3. To advocate for rapidly available existing and new HIV treatment.

    4. To promote the access of the latest available information about treatment legislation for patients, health care providers as well as policy makers.

    5. To influence changes in legislation and patent law in order to support the lowest achievable cost for HIV treatment, including the support for generic medicine.

    6. To monitor the changes in Health care systems and policies to ensure the rights and the quality of services influence positively the quality of life of people living with HIV/AIDS.

    Main EU files targeted

    The EU HIV/AIDS Civil Society Forum has been established by the European Commission as an informal working group to facilitate the participation of non-governmental organizations, including those representing people living with HIV/AIDS in policy development and implementation and in information-exchange activities. The CSF includes about 40 organizations from all over Europe. AIDS Action Europe (AAE) and EATG co-chair and provide support to the work of the EU HIV/AIDS Civil Society Forum, an informal advisory body to the European Commission.

    The European Testing Week is an initiative that was launched by HIV in Europe in 2013 to help more people to become aware of their HIV status.
    Initiative aims: The ultimate goal of European HIV-Hepatitis Testing Week is to make more people aware of their HIV and/ or hepatitis status and reduce late diagnosis by communicating the benefits of testing with the aim of supporting ongoing dialogue between all partners in the HIV, and hepatitis communities.

    Address

    Head Office
    Mettmanner Strasse, 24-26
    Duesseldorf 40233
    GERMANY
    EU Office
    Place Raymond Blyckaerts 13
    Brussels 1050
    BELGIUM
  • People

    Total lobbyists declared

    10

    Employment timeLobbyists
    100%10

    Lobbyists (Full time equivalent)

    10

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    2 accreditations were / are live (in bold) for the selected state of 16 Apr 2019

    Name Start date End Date
    Chiara LONGHI 14 Mar 2024 13 Mar 2025
    Ann Isabelle von Lingen 23 Mar 2024 02 Oct 2024
    Ms Ann Isabelle von Lingen 23 Mar 2024 15 Apr 2024
    Ms Chiara LONGHI 14 Mar 2024 15 Apr 2024
    Mr Pieter VANHOLDER 15 May 2020 01 Jun 2021
    Ms Ann Isabelle von Lingen 13 May 2020 13 May 2021
    Mr Pierre VARASI 20 Feb 2020 20 Feb 2021
    Ms Marina COGNEE 20 Feb 2020 20 Feb 2021
    Mr Bojan CIGAN 20 Feb 2020 20 Feb 2021
    Giorgio BARBARESCHI 20 Feb 2020 20 Feb 2021
    Mr Pieter VANHOLDER 18 Apr 2019 01 May 2020
    Ms Ann Isabelle von Lingen 04 Apr 2019 04 Apr 2020
    Ms Fiona GREENHALGH 04 Apr 2019 12 Feb 2020
    Ms Ann Isabelle von Lingen 21 Feb 2017 17 Feb 2018

    Complementary Information

    We are a voluntary organisation with over 170 members from over 45 countries within and outside Europe. The work of our volunteers counts for quite some FTE work as well.

    Person in charge of EU relations

    Mr Pieter Vanholder (Executive Director)

    Person with legal responsibility

    Mr Nikos Dedes (Chair)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    EU Institutions and Executive Agencies
    DG Sanco – Health and Consumer Protection; DG Enterprise and Industry; DG Research; DG Trade; European Parliament; European Medicines Agency (EMA); European Monitoring Centre for Drugs and Drug Addiction (EMCDDA); European Centre for Disease Control (ECDC)

    Other EU Platforms
    EU Health Policy Forum; HIV/AIDS Civil Society Forum (CSF); Pharmaceutical Forum
    United Nations programs and organisations
    UNAIDS, the Joint United Nations Programme on HIV/AIDS; World Health Organisation (WHO), the directing and coordinating authority for health within the United Nations
    International Organisations
    International Organisation for Migration (IOM); International Harm Reduction Association (IHRA); International AIDS Society (IAS); International Planned Parenthood Federation (IPPF)

    HIV/AIDS Organisations and Networks
    AIDS Action Europe; AIDS Treatment Activists Coalition (ATAC); International Treatment Preparedness Coalition (ITPC); Global Network of People Living with HIV/AIDS (GNP+); International Community of Women Living with HIV/AIDS (ICW); Eastern European & Central Asian Union of PLWH Organisations (ECUO); Global Campaign for Microbicides (GCM); International AIDS Vaccine Initiative (IAVI); AIDS Vaccine Advocacy Coalition (AVAC); HIV in Europe; NAM; Terrence Higgins Trust (THT)

    Public Health Networks
    European Public Health Alliance (EPHA); Concord; EU Civil Society Contact Group; International Harm Reduction Development Program (IHRD); Eurasian Harm Reduction Network (EHRN); Health Action international (HAI); Médecins Sans Frontières (MSF), European Forum for Good Clinical Practice (EFGCP)

    EATG involvement via projects
    AIDS and Mobility Europe; AIDS Action Integration; European HIV Resistance Network; HIV/STI Prevention & Health Promotion among Migrant Sex Workers (TAMPEP); Health GAP (Global Access Project);

    Other European organisations
    European Patients’ Forum (EPF); International Alliance of Patient Organisations (IAPO); European Forum for Good Clinical Practice (EFGCP); European Federation of Pharmaceutical Industries and Associations (EFPIA); European Coalition of Positive People (ECPP); European AIDS Clinical Society (EACS); European Platform for Patients Organisations, Science and Industry (EPPOSI)

    Other organisations and networks
    Platform for International Cooperation on Undocumented Migrants (PICUM); Open Society Institute (OSI); Human Rights Watch (HRW); Correlation European Network Social Inclusion and Health; The Global Fund to fight AIDS, Tuberculosis and Malaria (GFTAM); Global Health Council; Association Internationale de la Mutualité (AIM); European Consumer’s Organisation (BEUC); Comité Permanent des Médecins Européens (CPME); the European Network on Drugs and Infections Prevention in Prison (ENDIPP)

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2017 - Dec 2017

    Lobbying costs for closed financial year

    24,269€

    EU grant income for closed financial year

    135,399 € (Source: H2020 FP7)

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    Commission expert group - Civil Society Forum on Drugs#E02681 #http://ec.europa.eu/transparency/regexpert/index.cfm?do=groupDetail.groupDetail&groupID=2681 #Member #C#Sub-group on Relations with International Institutions#EU HIV/AIDS, Viral Hepatitis and Tuberculosis Civil Society Forum#E00934 #http://ec.europa.eu/transparency/regexpert/index.cfm?do=groupDetail.groupDetail&groupID=934 #Member #C#EU HIV/AIDS, Viral Hepatitis and Tuberculosis Think Tank#E00933 #http://ec.europa.eu/transparency/regexpert/index.cfm?do=groupDetail.groupDetail&groupID=933 #Observer #C

    Groups (European Parliament)

    None

    Communication activities

    HIV in Europe is a pan-European initiative initiated in Brussels in 2007. The initiative provides a European platform for exchange and activities to improve early diagnosis and earlier care of HIV across Europe. The initiative is directed by a Steering Committee composed of physicians, researchers, civil society actors, policy-makers of national and European public health institutions. It is increasingly collaborating with the Hepatitis community.
    The EMERGE project (Evaluating mHealth technology in HIV to improve Empowerment and healthcare utilisation: Research and innovation to Generate Evidence for personalised care) is a mHealth platform to enable self-management of HIV in patients with stable disease. The platform will provide users with web based and mobile device applications which interface securely with relevant medical data and facilitate remote access to key healthcare providers. EATG will be acting as community partner, supporting standards for HIV care and guidelines for routine monitoring both in the involved countries and more broadly across the EU and potentially wider.
    ESTICOM – EUROPEAN SURVEYS AND TRAININGS TO IMPROVE MSM COMMUNITY HEALTH aims to strengthen the community response and raise awareness about the persisting legal, structural, political and social barriers hindering a more effective response to the syndemics of HIV, hepatitis viruses B and C, and other STI among MSM. The main activities include surveys among MSM (EMIS2017) and Community Based Health Workers (ECHOES) as well as a training programme for Community Health Workers intended to be adaptable for all EU countries.
    HIVACAR – EVALUATING A COMBINATION OF IMMUNE-BASED THERAPIES TO ACHIEVE A FUNCTIONAL CURE OF HIV INFECTION. The project aims to change the current paradigm of HIV treatment by obtaining a functional cure for HIV thanks to effectively targeting residual virus replication and viral reservoirs.
    EHVA – EUROPEAN HIV VACCINE ALLIANCE, AN EU PLATFORM FOR THE DISCOVERY AND EVALUATION OF NOVEL PROPHYLACTIC AND THERAPEUTIC VACCINE CANDIDATES. Project aims: To develop a Multidisciplinary Vaccine Platform (MVP) in the fields of prophylactic and therapeutic HIV vaccines. The MVP includes four components: 1) Discovery, 2) Immune Profiling, 3) Data Management, Integration and Down-Selection, and 4) Clinical Trials.
    HAND – HEPATITIS ACCESS NEEDS. Project aims: To address the specific access needs within co-infected key populations to hepatitis prevention, testing, treatment and care services in Europe (with a special focus on EECA region), and to improve the capacity of key community leaders to further educate and support local community members and improve community involvement in treatment related advocacy and activism. The project has two main components: research and training. The research focuses on the access to hepatitis testing, treatment and care among people in detention and migrants. The training part provides targeted information on treatment and prevention of Hepatitis B and C through webinars in English/Russian and contributes to community mobilization via advocacy-focused workshops, organised in collaboration with local partners.

    Other activities

     Previous projects
    EUPATI was an IMI-funded consortium project, led by the European Patients' Forum, to educate patients and the lay public about how medicines’ R&D works. A consortium of 29 organisations is developing training courses, educational toolkits and a web-based library to provide objective and credible information about medicines R&D and how patients can get involved. EUPATI will cover seven languages in 12 countries.

    The main activity of work package 7 (WP7) was the preparation of a catalogue and a report on successful public private partnerships (PPPs) between patients’ organisations, industry and academia. The catalogue provides references and examples of successful collaborations that can be used as guidance for future partnerships, addressing the need for more active involvement of patient experts in medicines R&D.

    The previous consortium has developed a follow up of the project for further implementation of the activities after the end of the project.

    NEAT - European AIDS Treatment Network was a network of Excellence funded by the European Commission under the FP6 Programme. Its mission was to strengthen European HIV clinical research capacity. Nikos Dedes is the EATG project leader. The final version of the ECAB Review (which was funded by NEAT) has been published in June (see 3.5 The ECAB Review).

    ECRAN – European Communication on Research Awareness Needs project was designed to develop a portfolio of open educational resources, including a film, for the general population about the challenges raised by independent clinical research. EATG was a non-leading partner in 4 work packages of the project: Creation of a multi-language website, Production of an animated film on clinical trials, planning and development of communication tools and materials.

    EuroCoord was a Network of Excellence established by several of the biggest HIV cohorts and collaborations within Europe.
    Project aims: The overarching aim of EuroCoord was to use the scientific strengths of each collaboration to ensure that the best, most competitive research is performed. EuroCoord’s multidisciplinary approach allowed key areas of HIV research to be addressed, aimed at improving the management and life of HIV-infected.

  • Meetings

    Meetings

    2 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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