European Foundation for the Care of Newborn Infants

EFCNI is member of

Every Newborn Action Plan, a global action plan taking against preterm birth / https://www.everynewborn.org/

PMNCH (Partnership for maternal and newborn child health)/ http://www.who.int/pmnch/en/

HNN (Healthy Newborn Network)/ http://www.healthynewbornnetwork.org/

Alliance for Childhood/ http://www.allianceforchildhood.org/

None declared

Jan 2017 - Dec 2017

17,500€

The 2018 financial report is in the drafting process and will be published on the EFCNI website as soon as the final version will be approved by the tax and audit offices.

EFCNI is partner in research projects supported by Horizon 2020 and receives support from industry. For the partnership with industry, EFCNI has letter of agreements and works according to code of practices published on our website (www.efcni.org), assuring its status of independency, transparancy and neutrality.

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Implementation of evidence based European reference standards for hospitalized newborns, the European Standards of Care for Newborn Health (www.newborn-health-standards.org) (initiated and coordinated by EFCNI)

EFCNI White Paper Caring for Tomorrow (2012)

World Prematurity Day, 17 November (since 2008); initiated by EFCNI and meanwhile outreach to more than estimated 1.6 billion people worldwide

European Expert roundtables on different health related topics, e.g.
- The establishment of human milkbanks,
- The use of digital camera systems in the neonatal intensive care unit
- Addressing the nutritional emergency of extreme preterm birth – Optimal practice in parenteral nutrition (in progress 2019)
- on Respiratory Synctal Virus in preterm- and ill babies (in progress 2019)

EFCNI encourages all those involved or interested in the field of pre-conceptional, maternal and newborn health to interact and exchange ideas. It promotes mutual understanding and serves as a platform for the initiation, coordination and integration of all local, national, European- and worldwide activities promoting the best start in life for every baby as well as the improvement of short- and long-term outcomes of hospitalized babies.

EFCNI is particularly keen to establish a link between parents (patients), health professionals, scientists and different stakeholders.

EFCNI offers national patient organisations, (European) health care societies, researchers and third parties as well as private and institutional sponsors a platform to interact, provides relevant information and tailored support services.

INFORMAL INTEREST GROUP ON MATERNAL AND NEONATAL HEATH IN THE EUROPEAN PARLIAMENT
Support of the interest group which started its activities beginning of 2011. The interest group works on improvements of maternal and newborn health in the European counties, e.g. equal access to treatment and care, best possible care, patient safety and quality standards in all Member States.

WORLD PREMATURITY DAY, 17 November
EFCNI initiated World Prematurity Day together with its partnering patient organisations back in 2008.
In 2014, this day was celebrated for the fourth time as World Prematurity Day, supported by many international, national, regional and local organisations, societies, healthcare professionals, individuals and private sector companies. Over 60 countries actively participated. About 1.5 billion people worldwide were reached through social media activities (social media platforms, TV/radio, print media) and more than 60 countries contributed with activities or events.

EFCNI initiated and coordinates the European-wide project "Standards of Care for Newborn Health". About 220 experts, including patient representatives, from more than 30 countries develop standards in the field of newborn health/ prematurity. Long-term aim is an implementation of the standards within Europe to reach harmonized levels of care and the best start in life in every country.

For this project, EFCNI has received the German Award "Land of ideas" in 2017
www.newborn-health-standards.org

In 2019, EFCNI rolls out the EFCNI Academy which aims at providing evidence-based, standardized trainings to professionals;

Also in 2019, EFCNI launches the worldwide patient voice GLANCE (GLobal Alliance for Newborn CarE), a global network to represent the interests of babies born too soon, too small or too sick and their families. Initiated and coordinated under the umbrella of EFCNI, GLANCE aims at including parents, from all parts of the world to exchange knowledge and experience. GLANCE aspires to decrease the burden of afflicted families and their preterm and sick newborns to help them thrive beyond survival.

None declared