European Foundation for the Care of Newborn Infants

EFCNI is member of

Every Newborn Action Plan, a global action plan taking against preterm birth / https://www.everynewborn.org/

PMNCH (Partnership for maternal and newborn child health)/ http://www.who.int/pmnch/en/

HNN (Healthy Newborn Network)/ http://www.healthynewbornnetwork.org/

Alliance for Childhood/ http://www.allianceforchildhood.org/

According to the set-up of a German public foundation, EFCNI doesn't have member organisations, but works European- wide and globally in close partnership with parent and patient organisations, professional organisations and further organisations having an interest in maternal, newborn or child health.
For more information on our network, please visit: https://www.efcni.org/network/

Jan 2019 - Dec 2019

9,999€

50,843 € (Source: Horizon 2020)

The 2019 financial report is published on the EFCNI website.

EFCNI is partner in research projects supported by Horizon 2020, IMI2, and receives support from industry. For the partnership with industry, EFCNI has letter of agreements and works according to code of practices published on our website (www.efcni.org), assuring its status of independency, transparancy and neutrality.

none

Interest group on maternal and neonatal health (founded in 2011)
The group works on improvements in maternal and newborn health within the European counties, e.g. equal access to treatment and care, harmonised (quality) standards, patient safety, nutritional needs, etc.

Implementation of evidence based European reference standards for hospitalized newborns, the European Standards of Care for Newborn Health (www.newborn-health-standards.org) (initiated and coordinated by EFCNI) (2013 - ongoing)

- Registration of human milk in Europe

European Expert roundtables on different health related topics, e.g.
- The establishment of human milkbanks,
- The use of digital camera systems in the neonatal intensive care unit
- Addressing the nutritional emergency of extreme preterm birth – Optimal practice in parenteral nutrition
- on Respiratory Synctal Virus in preterm- and ill babies (in progress 2019)

- Survive and thrive: transforming care for every small and sick newborn by WHO and UNICEF (with EFCNI as contributor and editor)
- EFCNI White Paper on maternal and newborn health and after care services Caring for Tomorrow
- Benchmarking Report Too Little, Too Late? Why Europe should do more for preterm infants
- Born too Soon: The Global Action report on preterm birth by WHO (with EFCNI as technical editor)


World Prematurity Day, 17 November (since 2008); initiated by EFCNI and meanwhile outreach to more than estimated 1.6 billion people worldwide

In 2021, EFCNI serves as consultant to the Commission for the registration of human milk.

WORLD PREMATURITY DAY, 17 November
EFCNI initiated World Prematurity Day together with its partnering patient organisations back in 2008.
In 2014, this day was celebrated for the fourth time as World Prematurity Day, supported by many international, national, regional and local organisations, societies, healthcare professionals, individuals and private sector companies. About 1.5 billion people worldwide were reached through social media activities (social media platforms, TV/radio, print media) and more than 80 countries contributed with activities or events.

EUROPEAN STANDARDS OF CARE FOR NEWBORN HEALTH
EFCNI initiated and coordinates the European-wide project "Standards of Care for Newborn Health". About 220 experts, including patient representatives, from more than 30 countries developed standards in the field of newborn health/ prematurity. Long-term aim is an implementation of the standards within Europe to reach harmonized levels of care and the best start in life in every country.

For this project, EFCNI has received the German Award "Land of ideas" in 2017
www.newborn-health-standards.org

The EFCNI ACADEMY aims at providing evidence-based, standardized trainings to professionals;

EFCNI launches the worldwide patient voice GLANCE (GLobal Alliance for Newborn CarE) in 2019, a global network to represent the interests of babies born too soon, too small or too sick and their families. Initiated and coordinated under the umbrella of EFCNI, GLANCE aims at including parents, from all parts of the world to exchange knowledge and experience. GLANCE aspires to decrease the burden of afflicted families and their preterm and sick newborns to help them thrive beyond survival.

EFCNI encourages all those involved or interested in the field of pre-conceptional, maternal and newborn health to interact and exchange ideas. It promotes mutual understanding and serves as a platform for the initiation, coordination and integration of all local, national, European- and worldwide activities promoting the best start in life for every newborn as well as the improvement of short- and long-term outcomes of hospitalised babies.

EFCNI is particularly keen to establish a link between parents (patients), health professionals, scientists and different stakeholders.

EFCNI offers national patient organisations, (European) health care societies, researchers and third parties as well as private and institutional sponsors a platform to interact, provides relevant information and tailored support services.

None declared