European Cancer Patient Coalition

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No longer registered - Registration as it was on 13 May 2022
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Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2020 - Dec 2020

Lobbyists (Full time equivalent)

7.25 Fte (8)

Lobbyists with EP accreditation

3

High-level Commission meetings

6

Lobbying Costs over the years

  • Info

    European Cancer Patient Coalition   (ECPC)

    EU Transparency Register

    57929627082-79 First registered on 07 Nov 2011

    Goals / Remit

    Anticipating and participating in the legislative and policy changes taking place at EU level (EU Parliament and European Commission);
    Raising awareness about initiatives affecting cancer patients;
    Providing decision makers with a first-hand patient experience.

    Main EU files targeted

    Health Technology Assessment
    Access to Medicines
    Adaptive Pathways
    EU Beating Cancer Plan
    EU Health Data Space
    GDPR
    BECA report
    Directive on patients’ rights in cross-border healthcare
    EU4Health Programme
    Pharmaceuticals Strategy

    Address

    Head Office
    Avenue des Arts 6
    Brussels 1210
    BELGIUM
    EU Office
    Avenue des Arts 6
    Brussels 1210
    BELGIUM

    Website

  • People

    Total lobbyists declared

    8

    Employment timeLobbyists
    100%7
    25%1

    Lobbyists (Full time equivalent)

    7.25

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    3 accreditations were / are live (in bold) for the selected state of 01 Dec 2022

    Name Start date End Date
    Ms Adela Maghear 14 Jul 2022 13 Jul 2023
    Mr Alexander RODRIGUEZ TIMARAN 14 Jul 2022 13 Jul 2023
    Ms Eleonora VARNTOUMIAN 03 Jun 2022 02 Dec 2022
    Antonella CARDONE 06 Feb 2020 05 Feb 2021
    Ms Charis Girvalaki 05 Feb 2020 04 Feb 2021
    Mr Thomas BARLOW 09 Nov 2019 06 Nov 2020
    Mr Matias OLSEN 29 Aug 2019 28 May 2020
    Mr Aleksandras Filicevas 15 Dec 2018 13 Dec 2019
    Antonella CARDONE 15 Dec 2018 13 Dec 2019
    Ms Lydia Elizabeth Makaroff 13 Nov 2018 12 Nov 2019
    Mr Alberto OLIAS IBOR 13 Nov 2018 10 May 2019
    Ms Kallirroi PAVLAKOU 13 Nov 2018 10 May 2019
    Ms Anna Teresa Rek 20 Sep 2018 19 Sep 2019
    Mr Max SCHRAVENDEEL 20 Sep 2018 19 Sep 2019
    Mr Federico BISCOTTI 24 Apr 2018 31 Oct 2018
    Eleonora VARNTOUMIAN 24 Apr 2018 31 Oct 2018
    Ms Isabell Ellen Manneh 14 Apr 2018 12 Apr 2019
    Mr Yfantis THEODOROS 14 Apr 2018 31 Oct 2018
    Mr Aleksandras Filicevas 02 Dec 2017 01 Dec 2018
    Ms Elena ALBERTI 01 Dec 2017 30 Jun 2018
    Ms Lydia Elizabeth Makaroff 08 Nov 2017 07 Nov 2018
    Mr Francesco Florindi 27 Jun 2017 21 Jun 2018
    Ms Anna Teresa Rek 24 Mar 2017 21 Mar 2018
    Mr Alberto José DOMINGO BAYARRI 23 Mar 2017 21 Mar 2018
    Ms Isabell Ellen Manneh 03 Dec 2016 01 Dec 2017
    Ms Kalliopi Christoforidi 22 Oct 2016 20 Oct 2017
    Ms Lydia Elizabeth Makaroff 10 Oct 2016 06 Oct 2017
    Mr Francesco Florindi 20 May 2016 19 May 2017
    Ms Anna Teresa Rek 13 Jan 2016 12 Jan 2017
    Ms Mihaela Militaru 11 Nov 2015 09 Nov 2016
    Ms Kalliopi Christoforidi 10 Nov 2015 06 Nov 2016
    Mr Francesco Florindi 23 May 2015 21 May 2016
    Ms Elena Raluca Nicolae 15 Mar 2014 13 Mar 2015
    Ms Mihaela Militaru 15 Nov 2014 13 Nov 2015
    Ms Kalliopi Christoforidi 12 Nov 2014 10 Nov 2015
    Mr Francesco Florindi 20 Mar 2014 18 Mar 2015
    Mrs Elena Raluca Nicolae 15 Mar 2014 13 Mar 2015
    Ms Thi Anh Anh Tran 19 Nov 2013 14 Nov 2014
    Ms Kalliopi Christoforidi 16 Nov 2013 14 Nov 2014
    Ms Mihaela Militaru 16 Nov 2013 14 Nov 2014
    Mr Denis Horgan 08 Nov 2012 11 Nov 2012
    Mr Erik Briers 06 Oct 2012 16 Jul 2013
    Mr Denis Horgan 06 Oct 2012 16 Jul 2013
    Nicola COLSON 30 Mar 2011 31 Dec 2012
    Ms Francesca Paganucci 15 May 2012 10 Aug 2012
    Ms Kolia Benie 15 May 2012 06 Jul 2012
    Ms Nicola Colson 15 May 2012 31 May 2013
    Mr Martin LOHR 17 Jan 2012 31 Dec 2012

    Complementary Information

    7 Board members plus ECPC Secretariat Staff (1 Director, 2 Senior EU Affairs Manager, 1 Health & Research Manager, 1 Junior Financial Officer, 1 Project Coordinator, 1 Partnerships and Communication Officer, 1 Senior Partnership and Communication Manager, 1 Junior Project Coordinator, 2 Partnership and Communication Assistants, 1 Legal expert, 1 Administrative Manager, 1 Administrative Assistant).

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    EPPOSI; EUnetHTA; European Health Policy Forum; EFPIA Think Tank; UICC; ESMO; RCE; EU4Health CSA; TBCT; ERN-EURACAN; Healthy Europe.

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2020 - Dec 2020

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    1,747,624€

    Major funding types in closed year

    Other, EU funding, Grants

    Major contributions in closed year

    TypeNameAmount
    Grant H2020 320,000€

    Major contributions in current year

    TypeNameAmount
    Grant H2020 266,338€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Cancer

    Other activities

    European Medicines Agency (EMA), including Patient & Consumer Working Party (PCWP); EU Health Policy Forum; EUnetHTA Stakeholder Forum;Committee of Experts for Rare Diseases; European LeukaemiaNet; Conticanet; EUROCANPlatform - Translational research and personalised medicine; European Commission's Expert Group on Cancer Control; Cancer Control Joint Action-CANCON; FP7: RareCareNet - Information Network on Rare Cancer; FP7: eSmart - e-Symptom Management using Advanced Symptom Management System Remote Technology; Health Program: BenchCan - Benchmark Comprehensive Cancer Care.

  • Meetings

    Meetings

    6 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't publish information about such meetings. All information below comes from European Commission web pages.

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